MRI Results

We met with Lyla's new neurologist on Thursday to discuss the results of her latest MRI, as well as to consult on her case. After waiting 4.5 hours to see the doctor, he told us that basically the MRI did not show anything. It was frustrating because he said that the neuroradiologist said in her notes that her scan looked "normal", which he disagreed with. He said that her white matter looks abnormal, and that he feels as though she still fits under the category of a white matter disease. He is going to consult further with the neuroradiologist, and we are being scheduled for another EEG. He also ordered a whole genome array CGH analysis, which basically maps the whole genome. We may or may not get any answers from that test, which we already had the blood drawn for, and the results will take a few weeks. This test is the same genetic test that my niece Claire had, so it may be interesting to see how their results compare. Anyway, basically we didn't learn anything new. Mike and I both felt that we liked this doctor though, who is the 4th neurologist that we have seen now. We will continue to have her followed at UCLA, even though it takes forever to get up there! I hate going to LA! So, at least we feel comfortable that she now has a doctor that will be spearheading her case. I will update as soon as I get any results that are significant to report!